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Everyone Loves a Good Update.

Hello everyone!

I know its been a while, but a lot has been going on. The kids are out on summer break. So now my house is full of running screaming monsters. Just kidding. But they are monsters. Any who, a lot has happened since my last blog. My dear husband tore is ACL while playing basketball. He had to have surgery to repair it, and is now on crutches for most of the summer. My daughter, who is in the proficient class(honors program), had a banquet at the end of the school year. She was honored for making Honor Roll for the whole school year! She tested top second in her class. The other child tested higher than her only by a few points. Honor roll for the entire school year is a huge accomplishment for a 1st grader! She is now heading into second grade.

My son Christopher, who is autistic, just graduated from preschool and is heading into kindergarten. We are so proud of the two of them that it overflows out of us every time we talk about it. Christopher is doing wonderfully. He stills struggles with speech and social communication. We have noticed that he isn’t showing as many sensory issues as before. I am so happy to announce that he will be attending Julie Billiart School in the fall. It was a battle to get him to that point with his current school district. They didn’t want him to go. It seemed as though they met us with resistance all the way to this point. Even telling us that we wouldn’t get the scholarship and Christopher wouldn’t get accepted just to discourage us from applying to the school. Didn’t work though.

Don’t get me wrong his teacher was lovely, and the staff that I did have the pleasure of meeting were nice as well. However, the public school district just isn’t a good fit for Christopher. We never met the occupational therapist, which made we wonder if she was really ever there. We heard about her. We were once told that she was in the building, but when it came time for us to meet she miraculously disappeared. That led me to believe that he wasn’t receiving enough occupational therapy, being that he still struggles with buttoning his clothes, small hand eye coordination and a few other things. Its better, but I feel it would have been even better had he had more occupational therapy. The therapist was in the school I believe they said 1 to 2 times a week. She was spread thin between all the schools in the district. For reasons similar to these, we decided to pull him out of the public school system and get him into a private school.

The new school is awesome. They have everything that he needs right there. They have a decompression room so that he can take a time out. The class sizes are small. And he will have 2 teachers in every grade from kindergarten to 8th grade! They use tablets for learning so he will also be tech savy as well. Which is so important for this generation of children. They have all of his therapies located at the school too. We are in the process of applying for the Autism Scholarship( I will include a link at the end for information on the scholarship.) The school will cost almost 20,000 per year for him to attend, but its worth every penny and more. About the SSI. We are still waiting on our hearing date. He was denied for the second time so now we have to go to court. Not looking forward to that. But we will do whatever we have to do in order to make sure that Christopher gets everything he needs to be successful in his life. From beginning to end! On that note, Im going to leave you here! Looking forwards to updating you through out the course of the summer. Please check out my other blog I Love Photography and show some love while your there!( I will include a link for that too! 🙂 ) Have an awesome summer.

 

Links mentioned in the blog:

My other page: http://tanishasalaryphotos.wordpress.com

Autism Scholarship Info: http://education.ohio.gov/Topics/Other-Resources/Scholarships/Autism-Scholarship-Program

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LIght It Up Blue 2

Hello everyone. Sorry its so late! I have had one crazy and busy weekend. I wanted to check back with you all and show you how we participated in Light It Up Blue. This is our first year participating in Autism Awareness Month. As many of you know my son was diagnosed last year with autism. So this has been a very interesting year. Our family has gone through so many changes. I posted pictures for all my friends and family to remind them of the Light it Up Blue Day and we received a ton of support! It warmed my heart so much to see the support pouring in. Not just for my son, but for many of my friends and their families. We purchased our blue light bulb from our local Home Depot. Everyone in my family wore blue to support Autism Awareness all day. Below I attached lots of pictures. Thank you to everyone who participated in The Light It Up Event.

*Autism Awareness month is April! Check out autismspeaks.org!!

*Sorry I couldn’t attach the video..So here is the link! Please Please feel free to check it out!!!!*

http://flipagram.com/f/sr9sLYCJt2

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Light It Up Blue!!

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As many of you know my son Christopher is autistic. He was diagnosed last year in May. It has been a challenging year. With all the therapy and doctors appointments. However, he has made so many improvements that at times it’s unbelievable! April 2nd is the kick off day for Autism Awareness Month. People around the world including my family will be participating. You can participate too!! Please join us in purchasing a Blue Phillips light bulb from Home Depot to light a space in your home blue. If you aren’t able to purchase a blue light bulb, but have a blue shirt, blue socks, blue hair tie, or anything else that’s blue, please wear it on April 2nd in honor or Autism Awareness Month. I will continue to post this thought the month.

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Taking the time out to enjoy life

Every now and then it doesn’t hurt to take a step back from life. It doesn’t hurt to stop and smell the roses. It doesn’t hurt to do things for yourself. We are always so focused on obtaining and sustaining that we forget that we also have to live. I know money is tight. I know you have bills to pay. I know you have responsibilities for work. However, you also have a responsibility to yourself to enjoy your life. To make the most out every moment that you get.
 
Life isn’t promised. There are no guarantees. You don’t get do overs. You have to grab life by the tail and enjoy the ride. Get outside and smell the roses. Go to the library and read a good book. Snuggle up with your significant others. Play games with your kids. Take a weekend vacation. Stay at a local hotel. There are thousands of ways to take a break from this crazy world. You just have to want it. 
 
Ever since my son was diagnosed with autism, our lives have changed. Our weekdays are filled with doctors appointments, speech therapies, and behavioral therapy. We have homework from these therapies. I have two other children and a husband who also all need time. And sometimes I don’t know where Im gonna pull that time from. I was so bogged down with stress and anxiety that I had to withdraw from school for a little while to take a mental break. The work load was too much.
 
So now a year later after his diagnosis, I have learned how important it is to take a break. We take them often. We are not rich so the option of leaving every weekend isn’t always there. However, we find other ways to cut back and let go. If you are feeling overwhelmed and bogged down, remember stress kills! Its ok to stop and smell the roses. Its ok to escape the busy crazy lives that we all live. Take the time out to enjoy life!
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The Chronicles of Christopher (Brief Update)

Hello everyone. I just wanted to update you all with all that has been going on with Christopher. We are currently fighting for SSDI. As many of you may already know, in May, Christopher was diagnosed with Autism. He also suffers from social anxiety as well as speech delay. The behavioral therapy that he needs is very expensive. Christopher needs ABA (Applied Behavioral Analysis) Therapy.

Unfortunately we were denied SSDI for him. So we hired a lawyer to help represent his case. We had our first meet with them last Tuesday. Everything was brief and straight to the point. It was very easy. The lawyers advised us that in most cases the claim is denied the first time and you have to appeal sometimes as many as two times. We are hopeful that this wont be to tedious.

We just recently had a follow up with the psychologist who diagnosed him on Wednesday. We are excited to say that we will finally be starting his behavioral therapy on the 6th of December. His initial intake is on the 22nd of November. I’m excited because we have been struggling with his behavior over the past few weeks. Up until recently the Cleveland Clinic Autism Center didn’t accept our insurance for behavioral therapy. Now they do.

Christopher is doing wonderfully in school. He is in pre-k. He already reads. He has been reading since he was four. Once his teacher realized that he could actually read, she found a ton of kindergarten books for him to read. He reads at least 3-4 books a day. At home Christopher is a actually reading 1st grade books. He has been reading his sisters books. His comprehension is pretty good for a 5 year old.

He is doing well in speech as well. As I mention before in one of my previous blogs, Christopher is displaying sensory problems as well. So I have to schedule an appointment with a Occupational Therapist. He meets with one at his school. Unfortunately she is only available two times a week.  Well that about sums it up. I just wanted to update you all on how things have been going. I hope you all have a wonderful evening. Remember there is nothing that you can’t conquer!